The Emotional Challenge of Accepting Care

Co-written by
Dr Mike Eager
Dr Mike Eager is an experienced anaesthetist with a special interest in perioperative care and the challenges patients face when transitioning from hospital to home. With years of frontline NHS experience, particularly in rural and acute care settings, Mike brings a compassionate and insightful clinical voice to stories about recovery, independence, and ageing. His writing aims to bridge the gap between hospital care and real life—helping families navigate the complexities of going home, when it’s not as simple as it sounds.‍
Carers allowance 2024 | Care with Gladys
Asking for help can feel like giving up autonomy. This post explores the emotional hurdles many face when home support or care is suggested—and why those decisions impact not just the individual, but also their families and wellbeing.

The Emotional Challenge of Accepting Help

When the suggestion of home care comes up, the response is often the same:

“I don’t want someone in my home.”
“I’m not ready for that.”
“I’m not going into a home.”

These fears are deeply human. Accepting help can feel like surrendering independence. It can trigger grief — not only over physical abilities lost, but over an identity that’s shifting. But support doesn't have to be a threat to autonomy. In fact, early, gentle support can prolong independence. Having someone come in once a week for shopping or light cleaning might mean staying at home safely for years longer. Starting care when it’s a choice, not a crisis, keeps people in control and involved in the decisions.

Why People Resist Care - Even When They Need It

Loss of Identity and Control

For many older adults, needing help challenges core beliefs about who they are — capable, independent, private. Accepting support can feel like giving up the life they’ve built.

In fact, studies show that older people often associate the need for care with a loss of autonomy and personal dignity. One UK study noted that receiving home care was “sometimes seen as a sign of failure” (Godfrey et al., 2012).

And if that care involves personal tasks — like bathing or dressing — the emotional toll can be even higher.

Fear of the Unknown

If someone has never received formal care before, the whole idea can feel intrusive or clinical. They may picture strangers coming into their space, routines being disrupted, or a slippery slope toward a care home.

Fear, not just pride, drives a lot of resistance.

Denial and Cognitive Decline

In some cases, resistance is part of a deeper issue — not fully recognising the extent of their needs. Conditions like dementia, depression, or early cognitive impairment can make insight difficult.

A 2020 report from the Alzheimer’s Society found that 1 in 3 people living with dementia delayed seeking support, with many not understanding the changes in themselves (Alzheimer's Society, 2020).

The Emotional Toll on Families

When a loved one rejects support, it can create deep distress for the family — especially if that person’s safety is at risk.

"I lie awake worrying she'll fall again."
"He's not taking his meds — but won't let anyone help."
"Mum shouts at carers and tells them to go away."

These situations don’t just create worry — they can fracture relationships, stir up guilt, and leave families caught in limbo, torn between respecting autonomy and stepping in to prevent harm.

The tension is also a major contributor to caregiver burnout. According to Carers UK, over 70% of unpaid carers report feeling overwhelmed by their responsibilities, with many citing emotional conflict as a key stressor.

And the impact ripples outward. When care is refused, those unmet needs inevitably fall to loved ones — often family members already managing their own jobs, children, or health concerns. Over time, this reliance can become unsustainable, taking a toll on the physical and emotional well-being of the caregiver and affecting the entire family dynamic.

What can be done to mitigate this?

There are simple ways to minimise some of this anguish and uncertainty. They revolve around communication and openness. Talking with your next of kin about your beliefs, priorities, and values is paramount, especially if you or a close family member is elderly.

Think about:

Under what circumstances would you accept help in your home – if you couldn’t manage the stairs? The shopping? The gardening?

When (if ever) would you consider going into a care home? What about sheltered accommodation? It is important to consider uncomfortable scenarios: e.g. if you were bedbound, would it change your opinion?

If you were incapacitated and unable to make decisions for yourself, who would you trust to do so?

Consider setting up a Power of Attorney over medical matters – and be sure to talk to them about the various scenarios you might encounter. Consider an Advance Statement – explicit instructions drawn up that direct your care when you are not able to express your own preferences.

Talking about these things beforehand makes it easier to approach them if the decision is thrust upon you by circumstance.

Continue reading - Part 4: Start the conversation early - Strategies for Navigating Resistance

How can Gladys support you and your family?

Our mission is to make finding private elderly care simple and accessible -long before a hospital stay or unexpected health event. Covering Bath, Bristol, North East Somerset, Wiltshire, South Gloucestershire, Bournemouth, Poole, and Christchurch, we provide compassionate care at home and flexible domiciliary services. From one-off house cleaning for seniors to ongoing respite care in Bristol, our local network of self-employed carers helps you plan proactively - whether for companionship, post-hospital recovery, specialist support like dementia care, or full live-in arrangements. Choose Gladys Care for trusted elderly support, dependable home help, and the peace of mind that comes from a truly community-focused agency.


Find local support

Resources & References: tools to help structure conversations

NHS England. Care and support needs assessments

Age UK. Advice on care at home

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Danielle Chatterton
Feb 20, 2025
8 min read